Day 16/RAI

The Radioactive Iodine treatment was on Day 16.  We continued to follow the LID Days 16-18 per the doctor's orders.  This was the last meal entry day as I was limited by number of blog pages.


Breakfast
-Per doctor, light breakfast before 6:30am ok since RAI scan appointment is at 8am- with the radioactive iodine dose administered early afternoon.
-Steel cut oats with brown sugar, brown sugar and cinnamon.
-Blueberries
-Cranapple juice



Yes, that's the canister with the radioactive iodine capsule.  It was lead-lined and weighed ~15 lbs.
Lunch

-Could not eat for 2 hours after the RAI ...no lunch!



Snack
-Banana
-Diet Coke



Dinner

At RAI appointment, physician mentioned that "sense of taste" may be off for about 4 weeks beginning 72 hours after RAI---in other words, when we discontinue the LID and switch back to our usual diet!  Sounds like many patients complain of a metallic taste.... 
Decided to make a spicy dish tonight since no nausea and he can still taste his food! 
Homemade spicy rub- seared chicken with coconut milk and lime zest quinoa.  Homemade mango sauce. Notice- food is served on a disposable paper plate- also used plastic utensils- since everything must be discarded for two days following the RAI.

-Seared chicken breasts with homemade spice rub (Smoked paprika; garlic powder; onion powder; ground cumin, chipotle chile powder; kosher salt and fresh ground pepper).  
-Homemade mango sauce: place the following in a blender:  peeled/seeded ripe mango, 1-2 T. rice vinegar, garlic, kosher salt, cumin, chipotle chili powder and smoked paprika.  Process until smooth.  Reduce on stove top if needed.
-NOTE: Check with your doctor on the iodine content of quinoa.  I did prepare this meal with it during my husband's LID since it was zero sodium- we assumed it was ok but, I have recently read that it may contain iodine.  You should double check before eating. 
Quinoa cooked with 1 c. lite coconut milk and 1 cup of no-salt chicken stock for one cup of dry quinoa; added kosher salt, zest and juice from one lime and dried cilantro leaves (did not have fresh cilantro on hand).


FYI:  I did serve all his meals on disposable paper/plastic after the RAI.


Taste Update 1 :  At about a week after the RAI, my husband began to experience taste issues.  We were waiting and expecting some level of sense of taste disturbance and it happened very quickly- one day, foods didn't taste quite right and then a day and half later- everything tasted like soap, plastic or metal.  My husband tried to be patient and remind himself that many folks regain taste in 4-8 weeks but, it was frustrating....when everything that goes into his mouth tastes the same- like soapy plastic or soapy fish---even water!
Taste Update 2 :  My husband's sense of taste returned gradually in about 7 weeks.  Every once in awhile a bite of something tastes a bit off but, then often the next bite tastes as it should.  Hang in there- and give it some time!

Good Health to You!


New Products Used Today

Check with your doctor on the iodine content of quinoa.  I did prepare foods with it during my husband's LID since it was zero sodium- we assumed it was ok but, I have recently read that it may contain iodine.  You should double check before eating. We love quinoa and prepare it regularly.  This bag was purchased at Costco but, have seen at grocery stores. Zero sodium.

Zero sodium; purchased at Whole Foods.

34 comments:

  1. Hello,

    Just a short wee note to thank you so very much for such a wonderful, helpful website. It will certainly help me with ideas for my LID. I love the pictures of the products!! Very,very helpful. Wish you a speedy recovery. :-)
    Elizabeth,
    Toronto, Ontario.

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    1. Thanks! You made my day- the blog has been my therapy during my husband's treatment. Wish you the best with your LID-
      Good health- Sonya

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  2. Thank you so much for doing this menu blog!
    I am meeting with my endo tomorrow to discuss my RAI (already completed two surgeries for TT). This diet and RAI will be the next phase for me with thyroid cancer.
    I am really stressed out about trying to take care of an eight month old and two year old, while trying to eat an entirely new diet, shop, plan meals, etc.
    When I found this blog, my stess melted away. I feel ready now and am so grateful to you for taking the time to help others!
    Big hugs!

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    1. So glad to know this effort has helped others- thanks for taking time to send a comment! Wish I could give you this full grocery bag of leftover un-salted foods!

      By planning your menus ahead (and freezing foods) you shouldn't have all the leftover cans of unsalted things that we have...I am planning to giving this bag to a local thyroid support group to share with someone on the LID.
      Best to you with your RAI! Sonya

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  3. Thank you for posting this menu! It is very helpful.

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  4. Right after this treatment I always crave chocolate and pizza! Thanks for the postings!

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  5. Thank you so much for this blog! I am on day five of the LID with RAI scheduled for May 23. The Thyca.org site is wonderful, but left me with questions. Your blog puts everything into an everyday, detailed yet easily understood fashion. The photos are wonderful and I can't wait to try many of your recipes. I hope your husband is well and that the stress level I am sure both of you experienced during this journey has subsided. Again, thank you.

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  6. Amazing site! Thanks for all the great information :)

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  7. I am on day 8 and searching for ideas -- thank you for sharing! I need some starburst jelly beans!

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  8. Just thank you!! This is very helpful as I prepare to start my LID!

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  9. Wow this was a find. Starting LID in two days. Thank you.

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  10. What a beautifully done site! You are amazing. I would love to reach out to you directly if you are willing. Thanks, Jackie

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    1. Hi Jackie- thanks for your kind words. I have just added a contact form to the blog site (located at the bottom right of the page). Feel free to send me a note. Best to you- Sonya

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  11. I start lid tomm, 3/10/14, your blog was a life saver. No more anxiety. Thank you so much for sharing.

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  12. I start my LID tomorrow for two weeks before I indoor RAI on june 27 2014 thank you for your blog it really is a great help for me as I know for other god bless you and hope your husband is doing well

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  13. Wow! Can't tell you how helpful this Blog is. My husband starts the diet on Monday. This is the best information that I have found. You are an angel.

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    1. Hi Sue- glad you found the blog helpful. If you need some more food ideas, do check pinterest. I have a board with lots of new recipes there and a lot others have LID boards also. You will find a link to my board at the top right section of this blog page in the "Helpful Resources" section. Wish your husband and YOU the best- Sonya

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  14. Hi, you mentioned that your husband experienced taste issues after the treatment. I'm wondering, did you state anywhere what his dosage was? I'm suppose to be getting the lowest dose, after a Total Thyroidectomony. I'm just curious what his dosage was (low, medium, high) - do you know this information? - Paul D

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    1. Hi Paul- Sorry if this goes through multiple times- for some reason I am having difficulty replying to your comment. He had a dose of 100 which at the time was standard. Now I read about people having 50 mc or no RAI at all. I do wish you the very best with your treatment. Sonya

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    2. Hi Sonya, my wife told me that you responded to my question. I've been off on other sites busy doing research on the LID and RAI treatment. After posting the question, I see on your other blog page that you mentioned his dosage. But, thank you for being so conscientious to respond to my question. I had a TT in May 2014 for Papillary Cancer with two of three lymph nodes effected. I have stage 3 Papillary Cancer. My endocrinologists is going to recommend to the nuclear medicine physician that I be given a dosage of between 30-50 mCi I-131. I'm hoping that I don't have/develop any of the issues that your husband experienced many months after his RAI treatment. And, I also hope and wish your husband and you the best! You are good people... Paul D.

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  15. Thanks for doing this! I start my low-Iodine diet in a couple of days and this helps tremendously! Scott N.

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    1. Thanks Scott- If you want more LID recipe ideas, check my Pinterest board- I keep an updated LID board with links to lots of recipes- there is a direct link on the right/midsection of this page in the Helpful/Resources Section. Best to you and good luck- Sonya

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  16. Hi there,
    I am 35 and have recently gone through a full thyroidectomy. I am a mother and wife. January 1/2015 I will be starting my LID in preparation for RAI on the 8th. I am scared and stressed out. It is the holidays and I really just got so overwhelmed with the amount of info I have to retain to prepare. Thank you for the blog you have done. It has helped me feel that I can handle it and I will be ok. I live in Canada and I am not sure if I will be able to find the same products, but at least I know that there are options :) Thank you and Happy holidays

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    1. Hi- thanks for your note. I am sending well wishes your way- sorry you are having to do this during the holiday season- you CAN get through this and I hope you will easily find ingredients in Canada- If I could offer advice, it would be to make and freeze several meals ahead of time. It will make such a difference to just defrost something in the microwave and not have to prepare. Plan at least one if not a couple of meals from something you may find comforting so if you experience nausea, you'll be ready---maybe a simple chicken soup with orzo and maybe carrots/celery. My husband did have a couple of days where he really needed comfort food. My best to you and your family! Sonya

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  17. Hello - I'm 32 yrs old, wife and mother of 6 month old and 3yr old girls. I had right side of thyroid removed May27, 2015 result were positive with two types of thyroid cancer so had the left side removed 4 weeks later. I will get my RAI treatment a little over two weeks from now and my anxiety has been high. This blog is amazing and so helpful, you are a wonderful kind person. Thank you for this blog, I see it's helping so many and has definitely made me breath a little easier now to start this diet.

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    1. Hi Bonita- I am sorry you have to go through all of this! Glad you found our blog helpful. I know it seems complicated and overwhelming at times- but, you really can do this- hang in there!

      If you need more food/recipe ideas, my LID pinterest board has additional options: https://www.pinterest.com/wssonya/low-iodine-diet/

      Best health to you- Sonya

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  18. This is so helpful, I can't thank you enough. Now I know how to do this LID diet, and what to expect afterwards. You couldn't have done it more perfectly, with pictures and product tips. I am 67 years old, had a full TT for papillary cancer, but my lymph nodes were clear, so I feel blessed. Best Wishes to all who face this process.

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    1. Your comment made my day! Glad you found it helpful- best to you ♥ Sonya

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  19. Sonya, I have to tell you... you have been such a blessing. I started my LID diet today. I will be taking a 100mCi dose on January 6th. I have 4 small children and a sweet hubby that will be missing me while I'm in isolation. I have to tell you, I have been stressed about this whole thing. When I went searching for some more info today, I came across your blog. I have been pouring over it all day! I couldn't have come across it at a better time. I have to keep reminding myself that the Lord has a plan for this and fear/anxiety doesn't come from Him. Thank you to you and your husband for the time you've taken to reassure others and to help lessen the load for all of us who are going through this. Blessings to you and your family! ---Chelsea

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    1. Hi Chelsea- Thanks for your comments. We do wish you the very best of health. Happy that you found some of this information helpful ♥
      Sonya

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  20. It was a God-thing that I came across your blog today. Today is Day One for me. I made what my husband referred to as Boy Scout foil packs last night to bring for my lunch today and there's a pot roast in the crockpot for when we get home from work! Your blog posts and recipes have eased my stress of making it through this process. Waiting on pins and needles for the phone call from my doctor's office to find out the date of my RAI treatment. My doctor told me to start the diet today... THANK YOU SOOO MUCH for your detailed and very informative blog. You've eased my stress and anxiety so much and let me know of some things I can have that I hadn't thought of! You are a Godsend!

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  21. Hi Jennifer- thanks for your note. So glad you are finding some of the info helpful. This overview is what I wish I had when were were approaching the RAI. Wishing you the best of health ♥ Sonya

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  22. So grateful to have found this website. Absolutely dreading the process and this blog really has helped with the fear factor and the "What in the world can I eat?!" concern. Thank you, thank you, thank you!!!

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  23. Thanks for sharing your menus. I've been through the routine a couple times, but It is great to get some fresh ideas. - Delinda

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